https://www.gosh.nhs.uk/your-hospital-visit/gosh-families/samis-gosh-family/

Sami's GOSH family

Sami was diagnosed with an incredibly rare genetic illness called Multisystemic Smooth Muscle Dysfunction Syndrome and has been coming to GOSH for many years.

Clinicians had feared the complexities of this syndrome made it too dangerous to operate, but as Sami’s condition worsened, they called an emergency meeting of around 40 experts, including a specialist surgeon from St Bartholomew’s Hospital who usually operates on adults.

In December 2021, more than 50 clinicians from Great Ormond Street Hospital and Barts Health NHS Trust teamed up to perform a lifesaving world-first operation for Sami.

Following the success of the first operation, Sami had a further two major operations and after months of recovery is now back at school.

During his time at GOSH Sami has been helped by many, many teams. Scroll through the pictures below to meet some of them:

  • Two young boys stood with a lady in a purple dress and headscarf, a man in a black jacket and three people wearing blue t-shirts. The word "Strong" is painted on the wall behind them.

    Sami with his parents, brother, and his GOSH Cardio Respiratory Physiotherapy family

  • Two young boys are cuddling and stood with a lady in a purple dress and headscarf, a man in a black jacket and six other women in pink and blue tops.

    Sami with his parents, brother, and his GOSH Paediatric Intensive Care family

  • Two young boys are stood with a group of people. On the wall behind them are illustrations of colourful fish.

    Sami with his parents, brother, and his GOSH Symptom Care team family

  • Two young boys are stood with a large group of people. On the wall next to them is an illustration of a koala.

    Sami with his parents, brother, and his GOSH Koala ward family

  • Two young boys are stood with a large group of people. On the wall next to them is an illustration of a pink flamingo..

    Sami with his parents, brother, and his GOSH Flamingo ward family

  • Two young boys, one is in a wheelchair, are stood with a large group of people.

    Sami with his parents, brother, and his GOSH Bear ward family