Clinics and wards used by the Immunology department

Much of the investigation and care of children with suspected or confirmed immune deficiency at Great Ormond Street Hospital (GOSH) takes place in outpatient clinics.

Each child has a named consultant, who will usually see him/her in clinic, although sometimes a registrar (junior doctor) will see him/her in consultation with the consultant. One or more of the immunology nurse specialists may be involved if an immunodeficiency is confirmed.

The care of all children is also shared with a paediatrician at the local hospital and the GP.

Occasionally it is necessary for children to attend the hospital for one or more days to have investigations, see other specialists or receive some treatment. If there are too many tests and/or consultations to fit into one day, accommodation can be arranged nearby. These visits usually take place on Pelican ambulatory care unit

Any child who needs inpatient admission to GOSH under the care of the Immunology department will usually be admitted to Robin Ward, Fox Ward and Pelican Ward although occasionally other wards are used.

Robin Ward has a team of specialist nurses and doctors. The attending consultant, who is responsible for day-to-day decision making and care of inpatients, usually changes each month, with four consultants taking part in the rota. However, important decisions always involve discussions with a child’s named consultant.

Robin Ward is a specialised unit for children who require protection from infection (and children affected by infectious diseases who need isolation). There are ten individual cubicles. Careful anti-infection precaution must be adhered to and there are important guidelines concerning visitors. Each cubicle contains a bed for one parent to be able to stay with his/her child. Accommodation cannot be guaranteed for more than one parent.

Robin Ward has a kitchen and sitting room for resident and visiting parents and families/friends. There is a playroom for children who are able to leave their cubicles. Meals are not provided for parents, but food and drink can be bought from the Lagoon cafeteria.

Investigation for possible immunodeficiency always involves blood tests and sometimes X-rays and various types of scan. Occasionally more complicated tests are needed that may require sedation or an anaesthetic.

Information about individual procedures will always be provided, and any possible risks or complications will be explained. Investigations will require a consent form to be signed.

Please see below the list of monthly clinics at GOSH.

Dr Austen Worth - second and fourth Wednesday morning

Dr Winnie Ip - second and fourth Wednesday morning

Dr Claire Booth - fourth Friday morning

Dr Maria Kusters - third and fourth Wednesday morning

Dr Matthew Buckland - first Monday afternoon

Dr Alexandra Kreins - second Wednesday morning

Dr Reem Elfeky - first and third Wednesday morning

Dr Tiphaine Arlabosse - second, third and fourth Wednesday morning

Multiple clinicians - first Friday morning

Multiple clinicians - fifth Friday morning

Dr Winnie Ip - first Wednesday morning

Dr Reem Elfeky - fourth Thursday morning

Dr Claire Booth - second and fourth Wednesday afternoon

Multiple consultants on rota basis - every Wednesday morning

The following clinics are held in conjunction with other paediatric centres:

Brighton and Sussex University Hospitals NHS Trust - Dr Maaike Kusters - three times per year

John Radcliffe Hospital, Oxford - Dr Austen Worth - four times per year

King's College Hospital NHS Foundation Trust (joint immunology/liver clinic) - Dr Austen Worth - three times per year

Outreach clinics allow children and families to be seen for assessment and management by the Immunology Unit in a hospital closer to their homes, avoiding the need to travel to London. In some situations, however, children will still need to come to GOSH for specialised investigations and/or treatment.