https://www.gosh.nhs.uk/wards-and-departments/departments/clinical-specialties/department-child-and-adolescent-mental-health-dcamh/the-tic-service/introduction-to-tourette-syndrome/additional-resources-for-tourette-syndrome/
Additional resources for Tourette Syndrome
Tourettes Action UK
Tourettes Action UK support and research charity for people with TS and their families
You can contact Tourettes Action through this form.
Email: help@tourettes-action.org.uk
Tic explanation card
Books
The following books contain lots of helpful suggestions:
General information
- The Tourettes Survival Kit: Tools for Young Adults with Tics by Tara Murphy and Damon Millar
- Nix Your Tics!: Eliminate Unwanted Tic Symptoms: A How-To Guide for Young People by Duncan McKinlay
- Tics: Therapist Manual & Workbook for Children by Cara Verdellen, Jolande van de Griendt and Sanne Kriens
- Tics: workbook for parents by Cara Verdellen, Jolande van de Griendt, Sanne Kriens and Ilse van Oostrum
- Managing Tourette Syndrome Parent Workbook: A Behavioral Intervention (Treatments That Work) by Douglas Woods
- Tic Disorders: a guide for parents and professionals by Uttom Chowdhury and Tara Murphy
- Coping with Tourette Syndrome: A Workbook to Help Kids with Tic Disorders (ideal for ages 5 to 12 years) by Sandra Buffolano
School and Friendships
- Friends forever: how parents can help their kids make and keep good friends by Fred Frankel
Managing anger
- I’m not bad, I’m just mad: a workbook to help kids control their anger by Lawrence Shapiro, Zack Pelta-Heller and Anna Greenwald
SEN support
It identifies educational, health, and social needs, and outlines the additional support needed. To apply for an assessment, you should speak with your Local Education Authority (LEA) or healthcare professional. It is important to note, however, that not all assessments result in the development of an EHCP.
Other resources
- A comprehensive guide to Special Educational Needs and Disabilities for parents and carers by the Department of Education.
- Regulations and guidance about access arrangements and reasonable adjustments.
- Young Minds - provides young people with tools to look after their mental health. You can access the Young Minds website here.
- Childline – provides a free helpline, counsellor chat, email support service, and online message boards. You can access the Childline website here. Helpline: 0800 1111
- Shout - provides 24/7 text support for people experiencing a mental health crisis. For help, text SHOUT to 85258.