https://www.gosh.nhs.uk/wards-and-departments/departments/clinical-specialties/cystic-fibrosis-information-parents-and-visitors/contact-cystic-fibrosis-cf-unit/
Contact the Cystic Fibrosis (CF) Unit
We are very happy for you to contact the Great Ormond Street Hospital (GOSH) Cystic Fibrosis (CF) Unit with any queries. In order that we can deal with them appropriately please use the following options:
Telephone contact
Normal working hours:
Cystic Fibrosis (CF) Unit office direct line: 020 7762 6714
All telephone queries during normal working hours should be made via the CF secretary, Nazrin, who will direct your call to the appropriate member of the CF team. These calls are logged and will be answered at regular intervals throughout the day.
Calls which are of a more urgent medical nature will of course be answered as a matter of priority and if necessary one of the nurses or our CF Fellow will be bleeped immediately.
Out of hours (for urgent medical issues):
0207 405 9200 asking for the respiratory registrar on call or Leopard Ward: Ext 8813
As a specialist centre, GOSH CF Unit provides out-of-hours advice for urgent patient needs. The nature of the query will be assessed and wherever necessary the on-call respiratory doctor will be contacted and will return your call to discuss the problem.
E-mail contact
CysticFibrosisUnit.Query@gosh.nhs.uk
If you have a query that is not of an urgent nature you may wish to e-mail us.
We now have a generic e-mail address for the CF team (personal e-mail mailboxes will no longer receive queries). Messages sent to the above address can be accessed by all of the team and we will ensure that the appropriate member of the team gets your message. Receipt of your e-mail will be acknowledged, and you should expect to receive a response to your query within five working days.
Please note that we have to be careful about the nature of information sent via e-mail due to the dangers associated with using public networks of any kind. If, however, you would not want us to use email please let us know and we will source an alternative route of communication.
MyGOSH contact
If you have signed up to MyGOSH, then messages can be sent via this platform. Messages are only accessible to the CF specialist nurses, not other members of the CF team. The CF team email (above) or CF team telephone are monitored on a more regular basis by more members of the CF team, so these methods of contact yield a faster response.