https://www.gosh.nhs.uk/press-releases/final-days-our-public-consultation-centre-research-rare-disease-children/
Final days of our public consultation on the Centre for Research into Rare Disease in Children
24 Jul 2014, 3:18 p.m.
Our public consultation on proposals to build the Centre for Research into Rare Disease in Children on a disused site near the hospital drew to a close on Sunday, 27 July 2014.
The centre is a partnership between GOSH, University College London (UCL) and Great Ormond Street Hospital Children's Charity. The building is set to bring hundreds of clinicians and researchers together where they will see patients and access state-of-the-art laboratory facilities under one roof.
Rare diseases represent a considerable health burden globally as taken together they affect one in 17 people at some stage of their lives. They are particularly prevalent in children and nearly one third of the children affected will die before their fifth birthday. GOSH and UCL are uniquely placed to translate ground-breaking research into better treatments and cures as together they have more dedicated paediatric researchers into rare disease and see more children with rare diseases than anywhere else in the world.
Our consultation programme was shaped in discussion with the local authority, the GOSH Redevelopment Residents' Liaison Group, our Members’ Council and other key stakeholders.
The centre-piece was an exhibition held over five days in three different venues, including 18 display boards with detailed information on development proposals and a 3D model. Information about the proposals was also shared in briefings for key stakeholders and leaflets, flyers and posters distributed throughout our buildings and to the local community.
Find out more information about the public consultation on plans to develop the Centre for Research into Rare Disease in Children (including an online feedback form).
You can also email your feedback to our Redevelopment team.
The consultation is an opportunity to share your views on the proposals for the design of the new building and raise any questions – so please get in touch and have your say.