Using new wearable technology to monitor Niemann-Pick disease

22 Mar 2016, 4:15 p.m.

Two balls, one orange and red and the other purple, yellow, red and green with 'physio' written across it in black.

A smartphone app, combined with wearable technology, will allow doctors to remotely monitor patients with conditions that limit their ability to voluntarily move their muscles. The app, known as 'aparito', uses a motion-tracking writsband to record the movements of patients with ataxia, and other related ambulatory conditions.

The data from the tracker is sent via a smartphone app, where it can be combined with other information such as medication adherence and events such as falls or seizures. Healthcare professionals can have constant access to this information via the web.

Great Ormond Street BRC-researcher Professor Paul Gissen, has been working closely with aparito, and Great Ormond Street Hospital is to be the first in the UK to use this new wearable technology in clinical practice. Patients could receive fewer tests and have shorter hospital visits by using the app, which will monitor routine activity in a continuous, non-invasive way.

Lab-grown mini-stomachs could boost understanding of rare diseases

Researchers at Great Ormond Street Hospital (GOSH) and University College London (UCL) have developed the first-ever lab-grown mini-stomach that contains the key components of the full-sized human organ.

When it is OK to link our data?

A guide for researchers by children and young people containing key principles which reflect children’s and young people’s views about when it is ok to link their data for research.

NIHR launches £13.7m investment into brain tumour research

The National Institute for Health and Care Research (NIHR) has announced a £13.7 million investment that will support ground-breaking research to develop novel brain tumour treatments in the UK.

New consortium aims to help improve care for arthritis patients

A new UK-led research group, including Great Ormond Street Hospital and University College London, aims to improve the lives of children, young people and adults with arthritis by defining for the first time what being in ‘remission’ from arthritis truly