https://www.gosh.nhs.uk/our-research/our-research-infrastructure/nihr-great-ormond-street-hospital-brc/brc-news/launch-h2020-project-scidnet/
Launch of H2020 project- SCIDNET
16 Sep 2016, 11:04 a.m.
SCIDNET is a European Commission Horizon 2020 -funded project which launched in January 2016. It aims to take gene therapy from current clinical trials to a medicinal product that can be delivered to any child in the EU. It follows on from previous EU collaborations that UCL have been involved in.
SCID refers to a group of rare disorders that cause severe abnormalities of the immune system, resulting in the inability to fight infections, and death in the first year of life if no effective treatment is given. The team at UCL ICH/GOSH have developed gene therapy for two specific forms of SCID, and BRC infrastructure has been essential to the implementation of these gene therapy clinical trials. Over the next 4 years, SCIDNET proposes to offer gene therapy as a curative option for over 80% of all forms of SCID in Europe.
SCIDNET is a collaboration between 12 different partners across Europe and is coordinated by BRC Deputy Director Professor Bobby Gaspar. In 2015 a total of 49 Health-related projects across Europe were awarded H2020 grants, 5 of which were given to UCL.
New plan announced to get more children access to gene therapy treatments
Great Ormond Street Hospital (GOSH) has announced plans to revolutionise how children living with a rare disease can gain access to life-changing treatments.
Patients, families, clinicians and researchers learn together on rare blinding condition
Last December, the Norrie Disease conference took place at University College London, Great Ormond Street Institute of Child Health, organised by the Norrie Disease Foundation and Professor Jane Sowden’s research group.
GOSH patient receives world-first treatment for her 'incurable' T-cell leukaemia
In May 2022, Alyssa, 13 from Leicester, became the first reported patient in the world to receive base-edited T-cells at Great Ormond Street Hospital for Children (GOSH), in collaboration with the UCL Great Ormond Street Institute of Child Health (UCL GOS
Celebrating three years of progress and breakthroughs at the ZCR
We're celebrating three years of the Zayed Centre for Research. That's another year of breakthrough research, with hundreds of clinicians and researchers collaborating to help seriously ill children from across the globe.