https://www.gosh.nhs.uk/our-research/our-research-infrastructure/nihr-great-ormond-street-hospital-brc/brc-news/getting-hands-research/
Getting hands-on with research
23 Oct 2018, 2:58 p.m.
Last weekend, we opened our doors to over 300 visitors for the annual Family Fun Day hosted by the National Institute for Health Research (NIHR) Great Ormond Street Hospital (GOSH) Biomedical Research Centre (BRC). The event, which is now in its fourth successful year, gives young people and their families the chance to go behind the scenes of research at GOSH and discover the fascination of science by getting hands-on with a range of interactive activities.
Visitors were able to try on the artificially intelligent tracking bands that are currently being used to monitor movement in a clinical trial for Duchenne’s muscular dystrophy at GOSH, and saw how researchers use 3D printers to create models of children’s hearts, helping cardiac surgeons prepare for operations.
In the Science Quest treasure hunt visitors were able to meet real GOSH BRC researchers and discover how their work helps find new treatments for children with rare and complex conditions such as juvenile dermatomyositis (JDM) a rare skin disorder. There was also a chance to dress up like a scientist and see how blood samples are tested in our clinical labs, as well as the opportunity to take part in a theatre project "Jude Starbeam and the Shadow Planet" - led by On the Button theatre group and inspired by stories of young people growing up with a brain injury and developed with GOSH BRC researchers.
Groundbreaking research
The GOSH BRC, which is currently running over 800 research projects, aims to increase understanding of the underlying causes of childhood conditions and accelerate the development of new treatments for patients who need them.
Visitors were given the chance to learn more about some of these pioneering projects through the activities on the day. The Growing Organs activity showed how stem cells are being used to repair damaged organs in children with inherited or acquired conditions. Most recently this technology has been used by GOSH BRC researchers to grow a piece oesophagus in the lab for the first time, paving the way for new treatments for children with gut conditions.
The team from GOSH’s gene sequencing facility GOSgene showed visitors how to extract DNA from strawberries and explained how they have developed a cutting-edge method of genetic sequencing which helped saved the lives of critically-ill children in intensive care.
Inspiring the next generation
On leaving the event one young visitor commented “I enjoyed it so much! It was very interesting because I want to be a doctor when I grow up”. One mum stated that she “liked the fact that a world which is hidden away from people was made accessible” and another commented “Really informative day for adults and children alike!”.
Deirdre Leyden, GOSH's Patient and Public Involvement in Research Lead, said “The event is part of our ambition to encourage conversations between patients, the public and GOSH researchers. It was amazing to see visitors of all ages getting stuck in to the activities and learning more about why research is vital for improving the lives of patients at GOSH and children across the world.”
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Revolutionary eye gene therapy gives children life-changing improvements
Four children have gained life-changing improvements in their sight following pioneering eye gene therapy at Great Ormond Street Hospital for a rare genetic blindness.
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The important role of data science in accelerating advancements in care for rare diseases
For many of young patients, especially those with rare or complex conditions, getting the right diagnosis and treatment can be a challenging journey. That’s where data science can make a real difference.
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GOSH Professor appointed to co-chair national children and young people cancer task force
We are delighted to congratulate Prof. Darren Hargrave and Dame Caroline Dinenage on their appointments as co-chairs of the Children and Young People Cancer Task force.